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Research involving community-based participatory approaches requires careful attention to the context in which it will be conducted. Identifying key contextual domains can assist with guiding CAB planning and engagement efforts to enhance the likelihood of successful outcomes.
CABs have a critical role to play in ensuring that researchers understand the lived experiences of patients and their families, and that these perspectives are brought to bear on the design and conduct of research. It is therefore important that the development and training of CABs be tailored to the context of each individual study.
The seven research teams that contributed to this study used a variety of methods to collect information about their CABs. These included surveys, focus groups, and interviews, both in-person and over the phone. Each team also developed a CAB description that captured their unique approach to engaging with stakeholders. The overall lead author reviewed and revised these descriptions to build consensus and ensure consistency across the seven studies. The authors then met in person and communicated by phone to CAB 도메인 discuss how the domains could be applied to their own work.
Results from this exploratory exercise indicate that five contextual domains are commonly shared by the seven participating research teams and may be useful to other researchers planning their own CABs. The domains are: (1) Recognizing and addressing barriers to participation; (2) Relationship building and culture change; (3) Meeting structure and scheduling; (4) Participant-led agenda and decision making; and (5) Monitoring and evaluation of CAB activities.
Using these recommendations, researchers can enhance their efforts to involve community members in the design and implementation of research that addresses their concerns. As a result, we hope to expand the understanding of the role that CABs can play in improving health care delivery and outcomes.
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